7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK
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State of Interoperability today and what to expect in the future cc @chanfimao

State of Interoperability today and what to expect in the future cc @chanfimao | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

The linked interview gives us all in Healthcare Technology  a lot of food for thought. This below is a set of points extracted and massaged with my viewpoints

 

The biggest barrier to physicians having the most complete medical history for their patients at every point of patient care is the lack of interoperability among information systems.

 

State of Interoperability today:

 

The industry has made progress in developing open standards and application programming interfaces to facilitate data fluidity and sharing among multiple electronic health record systems and data repositories. As a result, commercial and open source interoperability services are coming online. While there is room for optimism, the industry is still grappling with data structure and management challenges

.

First, incomplete, disparate and disconnected data.

Most health and patient data is stored as unstructured medical format, and identifying information in the data is a manual and time-consuming process. There are significant variations in the way data is shared, read and understood across health systems, which can result in information being siloed and overlooked or misinterpreted

.

Further, most EHR systems do not follow patients on their care journey beyond the hospital or clinic walls. As a result, only a portion of healthcare data is available at any point of care, resulting in a fragmented view of a patient's health history.

 

 

Second, slow adoption and scaling of open interoperability standards.

Standards can streamline the structured data exchange needed to improve preventive and value-based care for people, predictions, diagnostics, post-marketing surveillance of medical products (for example drug, device), care quality, cost reduction and clinical research.

Industry guidelines and resources like the Fast Healthcare Interoperability Resources (FHIR) from Health Level Seven International (HL7) have helped to set a standard, though there is still more work to be done to support organizations to remove barriers toward adoption and make the electronic exchange of data more seamless, with the goal of providing a better provider and patient experience.

 

Third, risks due to siloed data:

When it comes to storing health information including clinical, genomic, device, financial, supply chain and claims, data security is the top priority. Storing patient data across different systems and platforms makes it difficult to deliver personalized care, draw data insights and streamline service.

 

This is a pivotal moment in time when healthcare can take what it's learned over the past year and fix the underlying problems.

 

Perhaps the most important learning is that achieving true healthcare interoperability requires understanding, evaluating and solving issues in the underlying syntactic and semantic characteristics of the data. 

 

Syntactic interoperability requires a common structure so that data can be exchanged and interpreted between health IT systems,

while semantic interoperability requires a common language so that the meaning of data is transferred along with the data itself. This combination supports data fluidity.

 

The industry has made meaningful progress on this front.

 

Unlocking Benefits of Interoperability

 

As technology creates more data across healthcare organizations, applying technologies like artificial intelligence and machine learning will be essential to help take that data and create the shared structure and meaning necessary to achieve interoperability.

 

Shared structure and meaning will enable interoperability solutions that transform data input from various media types and forms: voice, image, scan, PDF, etc., into a common text format which can be shared with and leveraged by every entity in the value chain.

Instead of moving static, electronic documents or faxes like care summaries between healthcare providers, clinical AI-service APIs can enable EHR vendors and health systems to communicate in a standardized way with apps and other EHRs.

 

With access to all available information, advanced analytics and machine learning can then enhance medical and scientific insights tied to patient outcomes in an accurate, scalable, secure and timely manner.

 

 

read more at https://www.healthcareitnews.com/news/amazon-web-services-exec-talks-interoperability-lessons-past-year

 


Via nrip
nrip's curator insight, May 20, 2021 5:07 PM

As we move toward value based care processes, artificial intelligence and machine learning, paired with data interoperability, will improve patient outcomes while driving operational efficiency to lower the overall cost of care.

 

By enabling data liquidity securely, and supporting healthcare providers with predictive machine learning models, clinicians will be able to seamlessly forecast clinical events like strokes, cancer or heart attacks and intervene early with personalized care and a superior patient experience.

george sperco's curator insight, August 18, 2022 4:11 AM


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Rescooped by Lionel Reichardt / le Pharmageek from healthcare technology
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Use of EHRs to Gather Real-World Data on Pharmaceuticals #esante #hcsmeufr #digitalhealth

Use of EHRs to Gather Real-World Data on Pharmaceuticals #esante #hcsmeufr #digitalhealth | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

Using electronic health records (EHRs) to create a learning healthcare system, say the authors, can enable researchers to generate new knowledge that will accrue benefits to future generations of patients.

 

Real-world data are increasingly viewed as a crucial factor in the eventual acceptance of biosimilar drugs, and indeed, current real-world evidence points to the safety and efficacy of these products in the marketplace.

 

In a recent paper, officials from the European Medicines Agency, the Organisation for Economic Cooperation, and other European government entities explained that such data can help make decisions about pharmaceuticals—from development to reimbursement—more efficient.

 

The authors called for international cooperation on a learning healthcare system that will better harness these data. 

The authors note that the expense of prospective data generation in a research setting is high, limiting the number of research questions that can be answered in a randomized controlled trial (RCT).

 

RCTs are rarely large enough to detect infrequent outcomes, nor are they long enough to determine long-term outcomes. 

Using electronic health records (EHRs) to create a learning healthcare system, say the authors, can enable researchers to generate new knowledge that will accrue benefits to future generations of patients.

 

However, current inadequacies of EHRs present a “technical bottleneck” to the objective of gathering real-world data.  

The paper’s authors propose that governments establish and implement national health data governance frameworks to encourage the use of personal health data to serve the public interest.

 

The collection of data must translate into the production of useful evidence.

A coordinated and international effort will be key to speed the implementation of a true learning healthcare system for global benefit. 

 

read the news article at https://www.centerforbiosimilars.com/news/european-officials-promote-use-of-ehrs-to-gather-real-world-data-on-pharmaceuticals--


Via nrip
nrip's curator insight, October 15, 2018 8:18 PM

I am currently writing an Ebook on "Use of EHRs for Public Health" which covers this very concept. Please comment in the section below or tweet us at @plus91 (you can tweet to @nrip to reach me directly) your thoughts on EHR usage, and possible uses of EHR data for the benefit of the public healthcare system

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IBM Watson Health teams with ADA to Tackle Diabetes

IBM Watson Health teams with ADA to Tackle Diabetes | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

IBM Watson Health is teaming with the American Diabetes Association to apply cognitive computing to the ADA's 66 years worth of research and data. The results will be used to help entrepreneurs, developers, healthcare providers, and patients learn more about diabetes, prevention, complications, and care

 

In 2012, according to the ADA, 29 million people were living with the disease, and another 86 million were diagnosed with a condition known as prediabetes.

 

To address the challenge, IBM Watson Health and the ADA are collaborating to apply Watson cognitive computing to the organization's massive library of information and data. Through this effort, IBM and ADA hope to empower entrepreneurs, developers, healthcare providers, and patients to gain knowledge that can improve outcomes and even prevent the condition's onset.

 

First, IBM's AI platform will ingest all the medical journals, medical text books, Pub Med, and other diabetes literature and resources available, including all the content from the ADA's Diabetes Information Center. Second,  Watson will ingest the ADA's diabetes data sets. 

 

Watson will be trained to understand the diabetes data to identify potential risk factors and create evidence-based insights that can be applied to health decisions.

 

IBM also is collaborating with the Health Maintenance Organization Maccabi Healthcare services to build a predictive machine learning model to help identify early risks for diabetic retinopathy, the top cause of blindness for those with diabetes.

 


Via nrip
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Exploring the Effect of Data on Precision Medicine Research #esante #hcsmeufr #digitalhealth

Exploring the Effect of Data on Precision Medicine Research #esante #hcsmeufr #digitalhealth | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

In a study published in the AMA Journal of Ethics, researchers explored the role of social and behavioral data in precision medicine research.

 

Electronic health records (EHRs) can offer information on social and behavioral data, which can aid research investigating genetic and social factors across health disparities; for example, factors such as substance use and eating habits inform some of the risk associated with preventable premature deaths in the United States. Brittany Hollister, PhD, and Vence L. Bonham, JD, from the National Human Genome Research Institute at the National Institutes of Health, discussed potential biases in collecting, using, and interpreting EHR-based data in precision medicine research.

 

Current collection of behavioral and social data by precision medicine researchers is increasingly done using EHR data, as opposed to self-report methods such as surveys. However, extraction and use of EHR data poses challenges of inconsistencies or inaccuracies. Another challenge is determining what data are included or excluded from EHRs, and the consequences of using data collected through biased methodologies. The National Academy of Medicine addressed some of this in recommendations for the systematic capture of behavioral and social measures.2 They recommended intentional collection of structured social environment data, as well as the development of a plan by the National Institutes of Health to include social and behavioral data in EHRs. The current inconsistencies in collecting social and behavioral data pose difficulties to use in precision medicine research, but with improved collection methods these difficulties could be amended.

 

more at https://www.medicalbag.com/ethics/precision-medicine-research-ehr-data/article/808747/

 

 


Via nrip
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Harnessing data to improve patient outcomes #esante #hcsmeufr

Harnessing data to improve patient outcomes #esante #hcsmeufr | 7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK | Scoop.it

As data and analytics are increasingly leveraged in various aspects of the healthcare system, some companies are  making use of such capabilities to help clinicians make the best decisions for patients.

 

One such company is naviHealth.  Based in Brentwood, Tennessee, naviHealth provides both payers and providers with post-acute care management expertise. Its nH Predict tool allows clinicians to better predict a patient’s outcomes in order to craft a personalized post-acute care plan.

 

Using NaviHealths nH Predict tool, clinicians are better able to predict a patient's outcomes and generate a personalized post-acute care plan.

 

The result of the tool is a simple outcome report that is generated at the beginning of the patient’s stay in a facility or hospital. The report breaks down the patient’s basic information as well as how they’re doing in a variety of categories.

 

For instance, nH Predict outlines the individual’s gender, date of birth and admission date. It also includes their primary diagnostic group (such as COPD) and their usual living setting (like at home alone or in an assisted living facility).

 

Finally, the outcome report provides a score for a few of the patient’s functions based on the data of similar patients. It gives a score on the patient’s basic mobility (such as wheelchair skills or ability to take the stairs); daily activity (like bathing and dressing); and applied cognition (including memory and communication).

 

Additionally, the report creates a total average score for the patient based on their mobility, activity and cognition scores.

 

read the complete story at https://medcitynews.com/2018/10/navihealth-data-patient-outcomes/

 


Via nrip
nrip's curator insight, October 4, 2018 1:32 AM

Nowadays, healthcare data is increasingly being analyzed and complex algorithms created to help various aspects of the healthcare ecosystem.

 

This technique where some companies are  making use of such capabilities to help clinicians make the best decisions for patients, is also not new, and there are startups and enthusiasts working on building self learning algorithms to modify clinical pathways to create better patient outcomes in India, Singapore, Scandanavia. If you are working on something similar, please drop me a note. 

 

Beyond the hype, it will be interesting to see if the hypothesized benefits actually translate into reality. 

 

Plus91's R&D has stayed away from improving/modifying/changing medical care plans but instead we built self learning models both for early detection of diseases, as well as for early prediction of epidemics, and while we have been very successful with demonstrating epidemic prediction, and actually preventing it in 2 cases already, the same success is unfortunately not achieved yet in disease detection.