7- DATA, DATA,& MORE DATA IN HEALTHCARE by PHARMAGEEK

From HIMSS, by John Sharp:

Blogs, Journals, News, White Papers To help small practices, vendors need to think like patients

A report on a series of presentations on patient engagement at HIMSS15. The presentations included statistics on patients strong preferences to be notified by texting of appointments and other reminders and their desire to be equal partners in healthcare decision making

Telemedicine market to soar past $30B
An increasing aged population and healthcare costs are propelling the market growth.

Why what works for Uber may not work for medical apps

While many innovators and futurist like to see Silicon Valley startups with high valuations as a model for healthcare. This excellent piece points out the weakness of this argument - healthcare is based on a social contract, the risk of losing everything (not an option in healthcare),  unnecessarily galvanizing the opposition, misreading the law,  Uber’s strategy hasn’t even worked in the transportation industry yet (they now have 70 lawyers).

Patients and Families as Partners

Amer Haider of the startup Doctella shares his experience with his father’s hospitalization and the frustration of trying to obtain personal health information. Amer is an advocate of involving patients in patient safety through the use of checklist, but this hospital frustrated his attempts to get involved in a family member’s care.

My Medical Records | How To Get Them

From the Louisiana Health Quality Forum which is promoting getting one's health data - how and what to get - directly to patients. An important direct to consumer approach which should be copied by other states.

Will Personal Health Information Exchanges (PHIE) Lead the Consumer Medical Record Revolution and Bridge the Gap Between PHRs and EHRs?

This strong argument for patient access to medical records proposes an approach from a Frost and Sullivan white paper on using PHIEs rather than HIEs to get patients their data. Quotes leaders in the field including David Kibbe..

Sharing Your Fitness Tracker Data? ‘Pace’ Yourself

This article discusses the potential uses of fitness tracking devices in research. Runkeeper meets researcher.

Social Media Use in Chronic Disease: A Systematic Review and Novel Taxonomy

From the American Journal of Medicine, this literature review showed that "48% of studies indicating benefit, 45% neutral or undefined, and 7% suggesting harm. Using social media to provide social, emotional, or experiential support in chronic disease, especially with Facebook and blogs, appears most likely to improve patient care."

5 Things You Should Know About Your Electronic Medical Records

From the Cleveland Clinic blog, a good basic primer for patients on their portal.  The author, Steven Nissen, MD, warns that it may include medical jargon you may not understand but it will keep you well informed about your health numbers and your doctor's recommendations (assuming your portal has Open Notes).

The 2015 #HIT99 Results Are In..

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Via rob halkes

As the number of self-tracking health and fitness tools available to consumers continues to climb, a persistent question has been whether the data they collect might be useful to health researchers. Along with that: Are people who self-track comfortable sharing their data with researchers?

A new, must-read report from San Diego’s California Institute for Telecommunications and Information Technology (Calit2), funded by the Robert Wood Johnson Foundation, explores these and other questions.

Based on a survey with hundreds of self-trackers, a majority — 57 percent — said one critical assurance they would need before agreeing to make their self-tracked, personal health data available to researchers was that their privacy would be protected. More than 90 percent also said it was important that their data remained anonymous. Respondents said they’d be more comfortable sharing data if they knew it was only going to be used for “public good” research.

One open-ended survey that the report’s researchers posed to self-trackers found that 13 percent of respondents specifically mentioned an aversion to commercial or profit-making use of their data, according to the report. One respondent wrote: “It depends who gets it. Research using these data will be instrumental in the future of personal predictive services, but also for that reason are likely to be exploited by marketers and the politically short-sighted. Thus I would like transparency for who has access to my data.”

Via nrip